Wednesday, June 8, 2011

30 Years In, We Are Still Learning From AIDS


Ken Meeks, photographed in San Francisco in September 1986, died three days later. His skin lesions were the result of Kaposi's sarcoma, a rare cancer that was a harbinger of the AIDS epidemic. © Alon Reininger/Contact Press Images

30 Years In, We Are Still Learning From AIDS
But at the time, we had little idea what we were dealing with — didn’t know that AIDS was a distinct disease, what caused it, how it could be contracted, or even what to call it. 

As AIDS has become entrenched in the United States and elsewhere, a new generation has grown up with little if any knowledge of those dark early days. But they are worth recalling, as a cautionary tale about the effects of the bafflement and fear that can surround an unknown disease and as a reminder of the sweeping changes in medical practice that the epidemic has brought about. 

Reports of the initial cases were confusing. The first federal announcement, 30 years ago this week, concerned “five young men, all active homosexuals,” with pneumocystis carinii pneumonia, or P.C.P., a disease “almost exclusively limited to severely immunosuppressed patients.” Initial suspicion fell on a known infectious agent, cytomegalovirus

A month later, on July 3, 1981, I wrote The New York Times’s first article about AIDS, this one headlined “Rare Cancer Seen in 41 Homosexuals.” (“Gay” had yet to be accepted by The Times’s style manual.) The cancer was Kaposi’s sarcoma, and until then it had seldom been seen in otherwise healthy young men. 

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